![]() |
|
Our
Stories
Janine Hill: Her website - www.asmallerricherlife.com "A Smaller, richer Life" offers a new article each month on coping with disabilities.
Computerized Bio-energetic Testing:
I guess sometimes God has a way of knocking you on your butt when you need to listen more. Yes, I too am dealing with M.E and FM, which has been going on since the early 80's. No need to explain the roller coaster that entails. I was born and raised in a small town in Southern Ontario, close to Niagara Falls. My mother is from New Waterford, Nova Scotia. She also loved to write and I feel was a great inspiration to me as well. Unfortunately she died of cancer in 1981. After my book came out I was visiting a neighbour of ours. Just the week before, she had been going through some old papers, etc. She handed me something but didn't tell me what it was. As soon as I opened it I knew right away what it was. It was a poem my mother had written many years ago. Can't begin to tell you what that did for me. It was like a little note saying she was there for me. Very timely and no coincidence as far as I am concerned. While I was staying with friends of mine in Georgia and also prior to that, my friend kept wanting me to write a book. She is the one who inspired me to start writing again and I had no idea how much I had missed it. "A Friend For All Seasons" is a collection of mainly inspirational stories but also some poetry. It has been part of a journey my friend and I have gone through, dealing with life as it is from day to day, as well as being a two person support system figuring out how to deal with M.E and FM and with issues from our past that have caused various blocks in our lives. Our lives paralleled so much that many of the stories came out of both shared and individual experiences. The book started as a gift to her after we had a conversation about how we weren't read bedtime stories as children. Bit by bit I would write short stories or poems and give them to her. Eventually for her birthday one year, I put a bunch of them in a book for her and since then she adds each new item that I write for her birthday, Christmas or whatever occasion would come up. If you would like to see some more information on the book you can go to http://www.trafford.com/robots/03-2466.html - this will bring you directly to the page at Trafford showing my book and giving you more information that can be passed along. The book can be ordered on line or by calling toll free in Canada or the United States 1-888-232-4444. I think they automatically send it Priority Post, but you can request to have it sent by regular mail to save a few bucks. Another option is to order it from any bookstore. Again, the name of the book is "A Friend For All Seasons" by Mary Pendlebury and the ISBN # is 1-4120-1899-5 If you would like any other information please let me know. Many people have said that they have been able to put themselves in the stories. Some are thought provoking, some humorous and obviously some are a little more serious. I have had a wonderful response from people of various ages, male and female.
Harley William Hazelwood was born March 19th, 1954 in Berwick, Nova Scotia. His parents, Delma and Madeline Hazelwood, lived in Waterville, Nova Scotia with a son, age six and daughter, age two. Harley weighed over nine pounds at birth but almost died about two months latter from severe dehydration. After a three day stay in the hospital Harley seemed to flourish. His mother is proud to this day of his ability to walk at age seven months. He could get anywhere in the house by walking sideways along the walls and furniture. Harley had anemia at age five and took a sticky red medicine. His siblings were envious because the bottle was shaped like a spaceship or car. They thought it was a toy, not a yucky tasting medicine. Besides he received more attention from their parents! Because he did not speak well his sister interpreted his words. Gradually his speech became clear and he does not have any speech impediment today. In the late fifties and early sixties there were no child psychologists, resource teachers or other speech professionals to tell Harley’s parents what the problem was. Harley showed an interest in helping people as a young boy. At the age of 14, Harley started befriending people on the periphery of society. He brought these people home for meals, to watch TV, or to simply hang out. Age, male or female, race, religion or family name did not matter. They were welcomed by the family. The family, going back several generations, assisted those less fortunate. Harley’s maternal grandfather, for example, took bags of food to neighbors. He’d do this in the middle of the night because he believed in the scripture about doing good deeds in secret. Harley, like his grandfather, has no wish for special recognition of good deeds. Harley did not complete his education at the local High School. He decided to move to New Brunswick to be close to his older brother and family who lived in Oromocto, just outside the city of Fredericton. While in New Brunswick, Harley completed his education when he passed the GED exam. Harley worked at various jobs as a teenager; as a janitor at a local elementary school, dog setting and doing any errands and jobs a lady in the neighborhood required. Harley pursued various occupations in Fredericton as well. He sold insurance, worked in sales in a hardware store, was a cleaner at Gagetown and sold Amway. Harley did not concern himself with what jobs he did as much as with the quality of work he performed. Harley married Joyce Marie Flinn on October 18th, 1975 in Marysville, NB. His son, Colin, was born on October 2, 1981. His daughter Megan was born on March 20th, 1986. Harley knows first hand how it feels emotionally and physically to be disabled. On November 12th, 1987 a huge gust of wind, on the first day of snowfall, caused the company truck to leave the road and land in a big gully. Harley was only going 15 miles an hour at the time. He managed to push the door open far enough to get out. He crawled up the side of this gully through the snow to the side of the road where he was found by a Good Samaritan. Harley was taken to the hospital by ambulance. His back was injured in the accident. In April 1989 Harley had back surgery. A disc was removed from his back and once he recovered Harley went back to work. He found it very difficult to climb ladders and carry paint because the constant movement of his arms and body caused so much pain. Harley lasted twenty hours before giving up. The chronic pain level was an ongoing torment. As a result of the back injury Harley stopped doing work he loved and accepted a disability pension. This was difficult to do because Harley had the desire to contribute to his family and society. Far more problematic was seeing his wife pick up two or three part time jobs to provide food, shelter, clothes and other necessities of life. A volunteer “is someone willing to come and volunteer his or her time to just help those less fortunate than themselves.”[1] There are thousands of disabled people doing volunteer work in Canada, contributing to those who cannot help themselves and bringing awareness to the public and political sectors about the needs, struggles and victories of those who are disabled; physically, mentally, emotionally, and/or financially. Harley Hazelwood is one such volunteer, a compassionate person who gives to others in need. He does this through self discipline, organization and motivation. Taking care of oneself is primary to living a productive life. Accepting the need for rest, pain medications, etc. is necessary. To be productive a disabled person has to organize his life in such a way as to waste no time, waste no energy in order to fulfill his objectives. No one achieves anything in life without motivation. Being faced with having to change a lifestyle and future dreams, accepting drastic personal and family routines cause many to lose motivation. However, it motivates many more, like Harley, in another direction. Shirley Soleil - A Personal HistoryShirley was born on July 22, 1952 in the Annapolis Valley of Nova Scotia. Her parents named her Shirley Mae Hazelwood. She changed her name to Shirley Soleil because it described who she is; a sunny personality with character who is as trustworthy as the rising sun. Shirley, or Sunny as she prefers to be called, draws people to her and after being in her presence they reflect the sun back. During her early childhood, her family moved many times. Shirley attended seven different schools, from Granville Ferry to North Side, East Bay, Cape Breton Island. At the age of seven Shirley stated “ Mom, I am going to college.” Her mother, as all mothers do, said, “ Well, we’ll wait and see.” From that time on Shirley continues to learn about life, about people, and about cause and effect. After graduating from High School, Shirley attended Acadia University in Wolfville, Nova Scotia. In 1976 she obtained her B.A. in English and Spanish. The command of the English language, plus learning the nuances of another, helps her to understand what is frequently unsaid when dealing with people in crises. Continuing her education, she graduated in 1979 with a Masters in Divinity. From 1979 to 1980 Shirley was the pastor of Arlington United Baptist Church. She left there to continue her studies. In 1982, she finished at Acadia with a Masters in Education. Her thesis was on “Empathy, Its Definition”. Empathy is a characteristic that continues to flow in her role today. While working on her M.Ed. she became unwell and was diagnosed with Fibromyalgia. The diagnosis of Fibromyalgia was so unusual at this time, Shirley had a struggle to find any information on it. Gradually, with determination to understand her malady, she began to compile a wealth of resource material. In 1988, Shirley went back to work, however, had to leave two jobs due to illness. In 1989, she was hired as a teaching assistant at a local community college and was forced to leave in 1992 for health reasons. This time she received the diagnosis of Chronic Fatigue Syndrome and Environmental Sensitivities. Once again Shirley was faced with the daunting task of health problems, with very little information available for understanding or treating these two illnesses. Realizing there must be other people facing these health issues, she began a support group encompassing CFS/ME, FMS, and ES. This group started with six members in October 1992, with no core group for two and a half years. By 1996, Shirley became the Atlantic Area Representative for M.E. Canada with a membership/contacts growing to over 1000 throughout Nova Scotia. During this time Shirley produced the first of four Help Your Self videos, all packed with information, treatment avenues and education. She also put on the first of many workshops, wrote a Leadership manual to facilitate others in starting and maintaining support groups, and 10 pamphlets and 3 booklets for people with these health problems. Shirley continues to write articles for newspapers, magazines and newsletters. She produces, writes for and edits the eight-page newsletter for I.D.A. Can., the Invisible Made Visible. Shirley is currently working on 3 books: His Beloved” is about the importance and connection between self-esteem and healing. “On Top Or Bottom” is one of empathy, understanding and information for those people who have lost one of our most basic of human needs, the simple ability to have enjoyable sex due to chronic illness. The third book “You Don't Know Me Now But...” is an autobiography. April 1996 saw Shirley starting a weekly TV series to further educate and inform people regarding CFS/ME, FMS, and ES. In June 2000, Shirley recorded her 108 th., one half hour TV show at Shaw Communications in New Minas, Nova Scotia. When Eastlink bought the business all community programming was cancelled. 1998 brought a burgeoning membership/contact list of 1500 + requesting information, education, and support. To meet this need, Shirley founded the Invisible Disabilities Association of Nova Scotia. I.D.A.N.S. grew rapidly and in January 2000 became I.D.A.Can. with 2000 + members/contacts and affiliates in the Atlantic Provinces, Ontario, Quebec, Manitoba, and British Columbia. July 1, 1997 brought recognition of her striving for excellence and caring for others in the form of the Governor General's Caring Canadian award. In 1996 and 1997 Shirley received two awards from the town of Kentville, N.S. for volunteerism. While continuing to have health problems of her own, Shirley maintains a busy schedule. She has appeared on Maritimes Today show with Duane Lowe seven times in three years and appeared on Canada AM in August 2000. Shirley has been interviewed on local and national radio shows; the local radio show with the late Terry Thomas, CBC Radio Noon and Information Morning, and CBC Toronto. Journalists of The Advertiser , the Digby Courier, the Daily News, and Globe and Mail have interviewed her and one article reprinted by the National News. Shirley has had an article published in The Atlantic Baptist. Shirley gradually became aware of her interest in the Law about ten years ago. Every book, TV show or movie involving some aspect of the legal system was devoured with great interest. Being a logical thinking person, Shirley decided that the Law was an area in which her style of thinking and passion for justice could benefit others. Unfortunately her ill health prevented her from pursuing a career in the legal field. However, Shirley finds that Legal Advocacy is becoming an increasingly large part of her work. She brings encouragement and assists in explaining the legal process in layman’s terms to clients in their meetings with lawyers and attends Tribunals, giving moral support or as a witness. Shirley travels across Nova Scotia speaking to support groups, community groups such as Women's Institute, schools and hospitals. She has spoken to groups across Nova Scotia and as far away as Ottawa. This aspect of the work is one that Shirley takes great interest in. She meets face to face with people who are ill and learns of their individual needs. A session usually lasts two to three hours. Shirley speaks briefly about the illnesses, the organization and how it can meet their particular needs. The audience is then invited to ask questions. In this way Shirley feels she can best help, as each person’s situation is unique. The questions reflect what people really want and need to know. Presently, Shirley is involved in a home based business. Her passion for helping people will find fulfillment in counselling, tutoring, teaching and facilitating at workshops/presentations. Shirley also works part time for a Market Research Company. |
![]() back to Table of Contents |